Pilot study of psychiatric and social aspects of children and adolescents with fragile X syndrome [Pilotstudie zu psychiatrischen und sozialen Aspekten bei Kindern und Jugendlichen mit Fragilem-X-Syndrom (FRX)]

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Item Type:	Article
Title:	Pilot study of psychiatric and social aspects of children and adolescents with fragile X syndrome [Pilotstudie zu psychiatrischen und sozialen Aspekten bei Kindern und Jugendlichen mit Fragilem-X-Syndrom (FRX)]
Creators Name:	Häßler, F., Gaese, F., Colla, M., Huss, M., Kretschmar, C., Brinkman, M., Peters, H., Elstner, S., Weirich, S. and Pittrow, D.
Abstract:	Objective: The study describes the burden of psychosocial risks of mental illnesses and the ways in which children and adolescents with fragile X syndrome (FRX) can be treated. Method: Data from a sample of 34 patients with FRX younger than 18 years stemming from a prospective multicenter (n = 11) registry study (EXPLAIN) were analyzed with regard to psychosocial burden and treatment. Results: One third of all participants reported having relatives who suffer from FRX. The majority of participants were suffering themselves from one kind or another mental or neurological problems. Younger participants (< 14 years) tended to suffer from atactic disorders, epileptic seizures, and autistic symptoms. These disorders were usually treated by psychotropic drugs supplemented by logopedic therapies and occupational therapies (more than once a month). In our sample, 96.3 % of the younger patients and more than 57.1 % of the older patients were still living with their parents. Conclusions: Patients with FRX often suffer from additional neurological and mental disorders. For that reason, they should be diagnosed and treated early on.
Keywords:	Fragile X Syndrome, EXPLAIN Registry Study, Children and Adolescents, Psychiatric Symtoms, Therapy
Source:	Zeitschrift fuer Kinder- und Jugendpsychiatrie und Psychotherapie
ISSN:	1422-4917
Publisher:	Verlag Hans Huber
Volume:	45
Number:	2
Page Range:	141-147
Date:	March 2017
Official Publication:	https://doi.org/10.1024/1422-4917/a000466
PubMed:	View item in PubMed

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